What are you fighting for?
// March 20th, 2010 // No Comments » // Uncategorized
The first thing I asked when I was told I was HIV positive…… well I guess this is after I had the chance to speak with someone, because when I was told it was yelled into my room from the door, with other patients in the room, by a student doctor who then walked away. “Will I be able to keep doing the work I am now doing and how can I start to outreach to other HIV positive people?”
I was told that I should worry about me at the moment. I was also told that HIV would be a “blessing” for me. I ignored by statements and I am glad I did.
April 3, 2010 will mark two years that I have been HIV positive and up until finding my current HIV Clinic it was a complete nightmare and I knew I would die from my HIV leading to AIDS, not because of stigma and education, but because of access to care, education and support. At the time I was homeless and had been for over a year and we all know how this country treats homeless people, so the fact that I was now HIV positive was yet another nail in my coffin. Thank God I have learned to take the word “no” just like I take my vitamins because it only made me stronger.
Currently I have a great doctor and an awesome team of support through the clinic where I get my HIV care and since finding
this clinic, HIV is no longer something that I feel will lead to AIDS……at least not for me, because I now have a team in place that truly cares about me just as much as I care about me. Having great care makes all the difference in the world. In fact HIV is not something I worry about and give much thought to other then following the advice of my doctor, educating myself abut HIV as well as asking questions. My T-cells are very high and my viral load is very low. My body is healthy and I am doing great.
April 3, 2010 will also mark one year since I started my 2nd outreach called “Unpluggin’ HIV” the first outreach is called “Do Something Saturday” I started both outreaches as well as my grass roots organization while I was homeless…….after so many people told me there was no way I could help anyone or provide anything for anyone….those “no” vitamins are awesome!!!
The main part of the Unpluggin’ HIV outreach takes place bi-monthy in Downtown Los Angeles on Skid Row to 40 residents in an SRO building. I was made aware of the needs of the people in this building by someone who reads my blog and watches my YOUTUBE channel. After a few tries I was able to reach the case manager and speak with her about my outreach. She set up a meeting where I could speak with the residents and from there my outreach took shape.
Through this outreach I am able to offer meals, gently used and even new clothes as well as other items such as hygiene items, condom packs, free cell phones, peer support and I am even able to call on people from my clinic to help me when I need to refer someone for medical or mental support. I’ve grown very close and have come to even love and care very much for some residents and even though I only do my outreach bi-monthly I speak to many of the residents and even go down to visit them as often as I can. If they need something or someone to just talk to they also have access to my email and phone number. Working with them has been so awesome.
You would think that finding things like people to speak to them about treatment education, safe sex, understanding their labs
or even getting mental health people to come out and do presentations would be very easy. I am the first to tell you that it has been like finding a needle in a hay stack. I have looked and asked high and low and everyone always has a reason why they cant come speak, but when I see studies that suggest that such people are uneducated or so filled with stigma I have to raise my eyebrows because I know better.
Next month after nearly of year of trying to find someone to come do a “understanding your labs” presentation, I happy to announce that I have nailed down a date for the presentation and a person to not just do the presentation, but also provide lunch. It felt really good to finally be able to make this happen for these residents. I know many people will read this and say or think “so what, no big deal” but for people who do not have access…….equal access to such vital information this truly is a big deal. I am firm believer that is we spent far more time in giving people who are hardest hit by HIV and AIDS full and equal access, then we would see HUGE changes in how HIV and AIDS affects certain populations. Until we are willing to think outside the box, reach people where they are and stop blaming it all on education and stigma, then things will remain the same.
For both my outreaches I spend what little money I have in order to help homeless people and people with HIV or AIDS. Many times my own food stamps are spent providing meals for people who I know would go without. So as I sit here and think of how awesome it is to finally be able to have someone come to do an “understanding your labs” presentation down on Skid Row, I know I must work even harder to make certain that the next event for these residents be just as informative. After it took almost a year to make happen I also know that I will have to work very hard to find ways to reach the needs of these awesome people.
This is going to take some out of the box thinking, so ground breaking and bold steps on my part, it is going to require me to ask people who might not otherwise be asked to come help me with this effort, but when I think of just how far I’ve come with some much that has taken place in my own life, then I know all things are possible and I just have to be willing to work toward them.
So while this is very awesome make this happen, I am not going to rest on it or allow this one awesome event to be the only thing that happens in the lives of people who are low income, battling so much already in addition to HIV or AIDS.
People have asked me why I do what I do, why I fight for others and put myself second, people ask where I find the courage,
time and even the energy to stand up for what is right and I always look at them and say “If I am not willing to fight for people who are suffering, then how can I ask someone to fight for me?”
CHANGE requires hard work, long nights, lots tears and plenty more. CHANGE for these residents on Skid Row means there will be CHANGE for all humanity and this CHANGE includes me and it’s about time for CHANGE, not just talking about it, but being about it.
CHANGE is what Dr. King lost his life for, didn’t think twice about himself……he thought of me and how CHANGE would be better for me. CHANGE means there will be heartache and pain and it means being able to think far less of self and more about others. CHANGE requires me to stand up for what is right for HUMAITY, not any one community. Now I am in no way comparing myself to the great Dr. King, but I am saying that what he stood for and gave his life for took courage and strength to stand up for what was right, even though he was told he could not make CHANGE happen.
I am fighting for CHANGE.

Today was what I think is the final step in gaining a seat on the Los Angeles County Commission on HIV. I was recommended for the seat by my case manager at my HIV clinic. It was all a big surprise to me that I would even be considered for a seat. What I do in the way of HIV and AIDS as well as homeless issues is so far off the radar that most times I dont even think people are paying attention, which is awesome for me because I did not create the community work that I do to get attention, praise or anything close to this, let alone a seat on a county commission.
months of homelessness I had to visualize the land while I was riding through what seemed to be a never ending storm. I had to see myself at the finish line and that all I was going through would not break me, but make me much stronger. I had to trust and believe in me and hold on tight to my FAITH. As I began to emerge from the storm and could start to feel the sun on my face again and looking back to see the wake of all that I had been through, I was smiling to myself because I now knew what it meant to be “tried in the fire” as my Nana us to say. I knew what it meant to hold fast to what I believe and never be willing to give up just because someone said “you cant make it” I finally knew what was meant by the saying “greater is he who is in me, then he who is in the world.”
Last week I was invited to attend a commission meeting, I had already spoken there once before during HIV funding cuts last summer, however this time my attendance was to take a close look at how the commission operates and consider if this is something I would want to do. I was also invited to a caucus meeting right after the commission meeting. I am glad I did both because I was able to get some questions and concerns addressed as well as answered.
as well. many of the people share some of my background in the fact that they were once homeless and have battled through so much in addition to being HIV positive or having AIDS.
Who would have ever guessed that after all I have gone through that something like this would even be offered to someone like me? I mean after all I was told I could never help anyone because I was homeless and that there would be no way anyone could benefit of be empowered by the work I’ve created. But here it is over three years later since I created my first outreach, Do Something Saturday~that empowers people and it is almost one year since the creation of my other outreach Unpluggin’ HIV and they both continue to grow and reach people who are in need.
it means, I know it is so true for me and my life. “To whom much is given, much is required…..”and in my life of now 41 years God has given me so much, showed me so much favor and has blessed me with traveling grace and now I am being “required” to pay it forward and I am only too happy to do so. You see if God never does anything else for me…. he has already done more then enough.
I didn’t get too much sleep last night, in fact I got almost no sleep. My mind was on my housing and how things were going to play out today. So sleeping didn’t come easy.
understand why I have nothing but full confidence in my health care there. This may sound silly to some, but it has more to do with the fact that they provide excellent health care for me as a patient, but they go the extra mile to make sure that all my needs are met and this is where other clinics miss the mark and even fall totally off the map.
I was assigned to Phillip as my case manager and he took care of everything. He was kind, didnt treat me like I had been treated by others who knew I was homeless. He treated me like a human who was suffering through homelessness and needed some help. He cared about me as a person and that was the first time I felt like people in the medical field cared about me and what would happen to me. For the first time I felt like someone other then me and my friends cared.
did so with ease and no problem and once again I am in a calm sea smiling at the possibilities that are in front of me. My doctor signed my housing forms and my case manager filled out the paper that was required of him and my housing is safe and secure.
Now once again my friends Tina and Andy have taken the lead in this outreach by donating 13 baskets and I know I will not have to worry about this taking place, plus people from my YOUTUBE have already given support to the outreach as well. The other day my two close friends Krystal and Patrick also showed their love and support for my efforts.
friends.
To say that I have been a bit stressed out about my housing and the very small amount that I get each month in benefits is a huge under statement. Imagine being homeless for 29 months and getting into housing and it almost being a year only have it all possibly come to a end.
with the building management, however tomorrow is my meeting with housing authority and I am a bit concerned. Not because I have done anything wrong or that I have not filled out the forms, but because I have learned that anything can take place when it comes to government programs and given the current state affairs with our economy I have every right to be concerned. This has caused me plenty of stress.
I discovered the ceramics studio not long after I was diagnosed and right away it was a place to escape from all the horrors that were taking place in my life. It was a place for me to rest and not worry for a few hours about fist fighting, where I could sit down and a place where I felt like things were normal for the time I was there. I rediscovered my gift and love for ceramics and even painting. But most of all it was a place where I could pause, think and regroup.
fucked up in the head and HIV has nothing to do with it, it just gets all the blame. So outside of my blog, vlog and community work I had nothing until I discovered the studio. The studio has become my HIV support group and has been a place where I can turn to when my blog, vlog and community work are not enough and it has worked.
I finished the application and the only place where I might encounter a bit of a problem is the last page where I must get my doctor once again to sign, now this is the part that I am concerned about, because in the past my former doctor refused to sign it almost costing me this apartment. I am not concerned that my current doctor will not sign it, but that I can get it signed in time. You see all these forms have expiration dates and if one form falls out of date, entire application is held up and most be done all over again. In the meantime this could cost me housing because something like a date. I can see if it were a year out of date and to be honest in this case I don’t understand that because there is no cure for HIV or AIDS, so agencies should not be able to say forms expire.
This past week was a pretty busy one for me. It was mostly spent doing things for myself as far as housing is concerned. It has almost been a year since I have been in my own apartment so I’ve been busy with all the meetings and recertification that goes along with that.
organization moves forward and it too has grown, in my life there is peace and happiness, filled with love and joy. I have a new little buddy Dodger whom I love so much. He has been such a massive blessing for my life and has provided me with unconditional love and friendship. I am still growing and each day as God continues to shine down on me and in my life, things will move forward and get better and even when they seem to be going south or when I had bad days or set backs, I know in my heart I will get through it all, because of my faith and the awesome people who are now in my life.
Last night I had my very first Oscar party and man was it fun. I invited two friends over and we had a blast. I made some dips and I also cooked. I just wanted to make sure we had a great time. My two friends Donald and Franklin were my guests.
cook prime rib and shrimp, but I thought that might be a bit much for them, then I that I would do some enchiladas or maybe some bbq chicken and ribs. In the end I went with cornish game hens, wild rice, garlic whipped potatoes and fried shrimp. I also made some dips as well. For dessert I made a very simple cream cheese cherry pie. This was the very first pie I even made on my own and I have not made it in such a very long time.
Last week I got an email from someone who wanted to speak with me about the work I do for a documentary they are working on. We exchanged emails, but last week got away from me and before I knew it I had forgotten all about it. Which may not have been a bad thing since I have had several people tell me they would like to meet with me to talk about my community work and nothing ever comes of it. However this time was very different. This morning I called the number supplied and I had the chance to speak with someone regarding the project in great detail and after speaking with him I later got an email asking to have a meeting with me tomorrow morning.
need to make sure I have all the things I need for my appointment with my social worker. While going through all of this I also needed to make some time make plans for what is shaping up to be a very busy end of March and a jam packed April.
down on Skid Row for my Unpluggin HIV outreach that takes place for 40 residents. The plan is have a speaker come talk to the residents about their HIV labs and teaching them how to understand their labs. This may sound very easy, but believe me trying to get people to come speak on Skid Row is very hard. You would think that since they are taking information to the people who are greatly affected by HIV and AIDS, this would be something people would jump at and welcome, but since I am a small grass roots organization that does not have non-profit status nor a budget to offer anyone any money or incentive other then taking very important information on HIV and AIDS directly to those who need it the most, is very hard to make happen, but I am not going to give up. I will make this happen.
I also want to do an outreach to Chess Park and Venice beach, shop for clothes to wear when I am in Washington and then my trip to Washington. So April is a jam packed month for me. Plus I have so much more to prepare for as well.
Tomorrow is the the biggest day for Hollywood with the 82nd Annual Academy Awards which will take place just over 4 blocks from my apartment. Now I grew up in Southern California, so the Oscars and the “stars” that will walk the red carpet tomorrow have always been no big deal to me. I guess because I grew up here and my grandmother as well as great grandmother worked for “stars” or Hollywood executives.
and feeling like my life was passing me by and that people I thought would always be in my life as my friends all of the sudden walking out because I was no longer the guy dropping cash or inviting them to come hang out on my dime. I guess you could say that homelessness has made me realize something my Ma always use to tell me…”everyone is not your friend” it also forced me to put things into different perspectives and not to live my life through what society deems as successful. Not to allow others to live my life, set my tone, define me or tell me what is and is not or what the outcome will be. All of this is up to me and while others in many ways are along for the journey, they really get no say in how I get there, when I will get there or what route I will take.
Donald is the other person I invited, I met him through my Unpluggin HIV outreach down on Skid Row and just like Franklin, Donald is this amazing man who has lived a rich and vibrant life. He too has been through a lot and has also overcome a lot. He does not allow this disease to turn him into someone who just sits and allows life to roll past him. He loves his life and he is enjoying it to the fullest. Each time I get to speak with or see Donald I walk away with such a better appreciation for my own life and that the fact that I have HIV does not mean that my life ever has to be over and that I can life with HIV for a very long time. From him I am learning to keep smiling, keep laughing, keep striving, keep loving, keep reaching out to help others and above all, keep believing in God and that with him all things are possible. In the time that I have been able to spend with him I have seen in him much of what others say they see in me, someone who is selfless. Donald gives and gives, even though he does not have much, he will go the extra mile for someone and not expect anything in return. Just to hear him laugh truly does my soul so much good. He too is an awesome friend.
efforts to really combat HIV and AIDS in the hardest hit populations. In my opinion the report painted Blacks as stupid people who simply do not care about their lives, it made it seem like access to care is equal and I think everyone in this country knows damn well it isn’t. Not only are their huge disparities in care for Blacks, but education and prevention are also greatly disproportionate. When I was diagnosed with HIV on April 3rd 2008 in such a rude and nasty way by some lousy doctor at Harbor UCLA who yelled “Mr. Carr, you are HIV positive” into a room with other patients and simply walked off the message was clear “you don’t count”. In that moment with tears rolling down my face I knew HIV was not going to be easy for me, just like it hasn’t been easy for plenty of people, but especially Blacks and women of color. At the time I was homeless, with no medical care and Black. That’s almost like the 3 strikes rule we have in this country, but I have always refused to be pushed to the side and I was not about to be another Black man who died from HIV…..not because of stigma or lack of education, but because of access…EQUAL access to health care.
So while tomorrow will represent so much in the life of a “star” who gets a nod and bow from a golden award, I will celebrate something far greater and far more valuable with two amazing men who I am both honored and blessed to call my friends as well as my role models.
Thursday has been a down day for me. When I say down I mean it was pretty quiet. There were no outreaches for Do Something Saturday or Unpluggin HIV, but there was plenty of work that needed to get done.
This is been hard for me because I don’t know code and my social network is all cut and paste and templates. I love this because I am in full control and when I want to make changes I simply do it. This is not been the case with the website. Although I love the hard work and time my friend has been putting in since day one, I would still like to be able to make changes to the website when I need to. I also don’t want to feel like I am being a bother or asking too much of someone. So this means I need to spend some time learning how to do the work myself or simply do not renew the domain when it comes up for renewal in July.
I also needed to take Dodger out for his long walks today. He has been acting out and pissing in the apartment and I have not been a happy camper about this. The other night he even snapped and barked at me, so I needed to let him know very quick that there is only one KING in this castle. I think he got the message because today after I left him in the apartment all he did was bark while I was gone.
that fun stuff. We even had the chance to walk on the red carpet that was completely covered with plastic. It’s funny how people see it on TV and think the area is is so glamorous and swanky, but I think the area is just ok. It is nice how them manage to pull of the event. Although it has changed to much since the days when it was at the Shrine Auditorium right by USC. So just for people who have not had the chance to see the preparations up close I snapped some pics.
Today was a very busy day for me. I had a lot of things that I needed to get done for ME and for Dodger. I also needed to touch base with someone from the Los Angeles County HIV Commission, pay rent, pay some bills and even head to the store.
paid my bill online just one time and ever since then I have not received a paper bill. I am really glad I called because the service was scheduled to be turned off tomorrow. The reason I had no received a bill was because the Gas Company automatically enrolls you in their online program where they no longer send you a paper bill. I told the woman that I never asked or signed up not to get a paper bill and she told me, “Well you paid online and we naturally assume that customers who pay online do not wish to get a paper bill….we assume that they are more environmental friendly”
Lucky for me there was a service center on Hillhurst near Franklin, so I could ride my bike there. It would be a good workout with a small hill, but first I needed to go to the post office and get a money order to pay my rent. For some reason they do not take checks from people for rent. This is fine for me cause there is a very nice lady that I always get to see when I go to the post office this time of month, so I was looking forward to seeing her smiling face.
million questions to ask and the one closest to me is having problems paying her bill and was trying every trick in the book to get her service turned back on without paying. The guy at the other register could notmake up his mind on what phone plan to go on, so he had the person helping him go over it 5 times before he decided to go with the $19.95 prepaid phone. WOW after all of that and he went with a prepaid phone. I could not have been the person helping these two people because I would have told them to step to the side until they have made up their minds on paying a bill that they have ran up or picking a plan they want.
After all this he tells me that the price I wanted to pay from my line was not correct. He told me that the amount due for my line was only $31.02 and not $65.85 and at this point I was so pissed and lost that I called my friend and told him what was happening and once again I got the same thing I always get. “I’ll have to call and take care of it.” Frustrated I paid what I was told was due and asked for my receipt and left. However before I left the sales person tells me “you know you can avoid this all together by getting your own line.” and then the store manger chimes in “How important is your number to you?” I look at both of them and ask “are you really trying to make a sale of me after the way you both treated me?”
the past my place to go to PETCO, that is if they had what I needed. As it turned out they had what I wanted, but the price on two of the items was much more the I normally pay, so I skipped those. They guy at the counter was very helpful and was able to answer some questions I had about Dodger. I also need to get a gate for the front door so I am able to open it to let air in and not have Dodger run out. However I wasn’t sure what size I needed and I also wasn’t prepared to get it today, so I told him I can always come back.
Once back home I took Dodger out for his walk and then came back to return some calls and emails. I also wanted to touch base with two friends to see if they wanted to come over to watch the Oscars on Sunday. They both said yes and shortly after I spoke with they I needed to head to the store and pick up some things for my dinner. I have had this craving for a chicken salad sandwich and I dont have money to get it from a store and even if I did I am sure I would not b happy, so making it was the way to go for me. Plus I needed to use the chicken breast I had take out yesterday.
looked at some TV for about two hours and then got ready to hit the gym. My workouts have been going very well and the results are starting to show and I am very happy about this. I even got some awesome news when I was leaving the gym as well. I am ranked in the top 30 males in several different categories and to see me name there was AWESOME and a huge boost for me.

